Author Archives: mkrame08

Those were not the words I was expecting to hear AT ALL after receiving a negative genetic test. The genetic test I took tested the TSC1 and TSC2 genes and came back with no anomalies. I left that appointment feeling lighter and better, confident that I didn’t have TSC. I went to this appointment becauseContinue reading ““Clinically, I think it is very likely that you have Tuberous Sclerosis Complex.””

It’s been several months of test as we try to figure out what is actually going on internally. It all started with the mono diagnosis. I wasn’t presenting with the normal mono symptoms (sore throat, swollen glands, etc), so they continued to run blood tests as they tried to determine why I was having suchContinue reading “Diagnostics”

I’m new to blogging or journalism or whatever else you want to call it. What I wanted was a place to record my thoughts and my journey because let’s be honest, the amount of googling I did to try and find someone facing something similar led me to many dead ends. If I can helpContinue reading “The Start”