TSC-LAM doesn’t have me, I have it.
How I’m living, coping with, and experiencing a rare lung disease.
“Clinically, I think it is very likely that you have Tuberous Sclerosis Complex.”
Those were not the words I was expecting to hear AT ALL after receiving a negative genetic test. The genetic test I took tested the TSC1 and TSC2 genes and came back with no anomalies. I left that appointment feeling lighter and better, confident that I didn’t have TSC. I went to this appointment because…
Diagnostics
It’s been several months of test as we try to figure out what is actually going on internally. It all started with the mono diagnosis. I wasn’t presenting with the normal mono symptoms (sore throat, swollen glands, etc), so they continued to run blood tests as they tried to determine why I was having such…
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Just Breath 